Shiloh Pepin of Kennebunkport was born with sirenomelia, or "mermaid syndrome" - her legs were fused together. This is a condition that occurs once every 100,000 births, and usually proves fatal within 72 hours.
Shiloh had other plans. Despite her internal organs being significantly diminished or even nonexistent, she continued to live, becoming one of only a handful of people in history to survive for longer than one year. And while she had multiple surgeries, she never had surgery to separate her conjoined legs.
Here she is in a 2007 local news report.
And here she is in a documentary excerpt.
Shiloh Pepin passed away on Friday at Maine Medical Center in Portland, at the age of ten.
For more info: Shiloh's appearance on Oprah two months before her death