Danny L. Deaube' and his wife Bonnie retired in Oregon where he penned I Will Praise You in the Storm, a true story of medical trauma, organ donation and illness when two of Danny and Bonnie's four children were diagnosed with familial intrahepatic cholestasis." Their journey of faith and trust in the Lord taught them, "We can do all things through Christ..." (Philippians 4:13)
Their heartwarming and heartbreaking story began in 1975, one year after the young couple "went forward at Community Grace Brethren Church" to accept Christ and "discovered the love of God." They felt renewed and their "priorities" changed as they attended church, read the Bible and learned the ways of God.
Danny took his responsibilities as "head of the family" very seriously and his new desire to please God "overrode his earlier desire to please himself." Their healthy son Donald, born in 1969, brought the joys of parenthood and they anticipated more children.
Until their second son Stephen was born with a fatal liver disease, a "rare form of chronic active hepatitis diagnosed as familial intrahepatic cholestasis." Within a short time Stephen's damaged liver caused the whites of his eyes to yellow, his skin to turn golden and he experienced "extreme itching," symptomatic of a compromised liver. When Stephen was old enough to talk he would implore his parents to "scratch...harder."
Months of testing resulted in the fatal diagnosis of FIC, familial intrahepatic cholestasis. The doctor said, "There is no hope or cure...few patients survive into the third decade of life without treatment." With heavy hearts they prayed for a donor liver. A liver transplant "in the near future" was their only hope.
Even though Stephens medical issues were difficult for the family Danny and Bonnie wanted more children. Doctors assured them their "odds were one in a million to have another child with liver disease" and Holly was born one year later. However, at her two week checkup the doctor said, "She has it too."
Thus begins a story of trust forged in the fires of pain, trial and loss that would test anyone's faith. Yet Danny continued to say, "God is good all the time" because he and Bonnie trusted "all things work together for good to those who love God." (Romans 8:28 NKJ) Even when God's answer to prayer didn't come in the form they prayed for.
The Deaube's inspiring story of faith in the face of life-changing events offers hope and encouragement to those who struggle with medically challenged children or those who experience medical, physical or financial struggles that challenge their faith. Their poignant account is a testimony of God's grace and blessing that affirms our children are only on "loan from the Lord."
***For more excellent titles on medically challenged children, coping and loss see more titles below***
"I Will Praise You in the Storm: The Story of Stephen and Holly Deaubé, a Journey of Faith," by Danny L. Deaube, WestBow Press, 2013, 136 Pages, 978-1490813059, $11.95
Midwest Book Reviews—"Gail's Bookshelf:" July 2014
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