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World's largest neurofibromatosis conference set to tackle tumorous disease

Elderly woman with neurofibromatosis tumors on her back.
Wikimedia Commons (public domain)

The Children's Tumor Foundation will be hosting the largest worldwide meeting dedicated soly to neurofibromatosis (NF) this coming week (June 6-10) at the Omni Shoreham Hotel in Washington DC. The Children's Tumor Foundation is the leading nonprofit organization dedicated to funding research into treatments for NF, for which there currently is no cure.

Neurofibramatosis refers to a number of inherited genetic disorders that affects one in 3,000 people and can cause tumors to grow anywhere in the body, with a high risk of developing in the brain resulting in critical health issues including loss of vision, learning disabilities, and intense pain. These include Neurofibromatosis type I, in which the nerve tissue grows tumors (neurofibromas) that may be benign and may cause serious damage by compressing nerves and other tissues; Neurofibromatosis type II, in which tumors of the vestibulocochlear nerve or cranial nerve 8 often leading to loss of hearing. It is also considered to be an “autosomal dominant disorder,” which means that it can develop even if only one parent carried the affected gene is needed for the disorder to develop.
intense pain.

The theme for this year's Conference is "Connecting for a Cure," which reflects the event's impressive gathering of clinicians, researchers, and scientists from many different 'classical' disease areas, including genetics, neurology, oncology, pediatrics, neurosurgery, orthopedics, and many others. It will also feature the Foundation's first business satellite meeting - a unique gathering of members of the financial and pharmaceutical industries, as well as clinicians and researchers, who will focus on business opportunities in this field. In the meantime a patient-focused forum will take place simultaneously at the Hotel allowing patients the opportunity to learn more about NF, meet other NF families, and interact with the researchers who are working to end the disease.

For more information contact the Children's Tumor Foundation 120 Wall Street, 16th Floor New York, NY 10005-3904 212-344-6633.