The heyday of fund raising events for cystic fibrosis is occurring this year on Feb. 20th at 6:30 pm. To 1:00 am. At the Washtenaw Farm Council Grounds near Saline. For the sixth year in a row this fundraiser will be enjoyed by many, while raising money for research and helping to improve and extend the lives of those afflicted with cystic fibrosis.
More than 300 people are expected to attend. There will be fun, food and entertainment and this year with a tropical flair. You are welcome to dress in any attire, but those that wear their Hawaiian shirts, hula skirts and tropical leis will be in the running for the 'Best Beach Attire' contest.
Cystic Fibrosis is a genetic disease that causes the natural mucus in the body to become thick and sticky. This causes problems of blockages in the body's organs, especially the lungs and the pancreas. Usually severe breathing problems are associated with this disease causing a life long struggle with respiratory problems often resulting in severe respiratory infections that require aggressive treatment. Patients generally also have problems with nutritional absorption, digestion and growth and development. Unfortunately there is not a cure for cystic fibrosis and the patient condition usually worsens over time.
However with the advancement of medicine through research, the life expectancy of patients has been increasing steadily. People readily live into their mid to late 30's and with new treatments as late into their 40's and longer.
Emily Schaller, 27, will be the guest speaker. She is a resident of Detroit and has had the lifelong struggle of living with cystic fibrosis. Everyone is looking forward to hearing from her, she has been the inspiration for finding a cure for CF for the Rock CF Foundation.
There will be much entertainment, food and fun from many sources and people. There will be a fun time had by all. Here is the Winter Beach Blast promotional flier with many more details. The hope is that many more than expected will be able to attend to help with this wonderful and worthy cause.
Saline residents Dan and Renee Doley and Bill and Wendy Beardsley, are the organizers of this amazing annual event. The Dooleys have been touched by cystic fibrosis, two of their three children are afflicted with it. But through their own struggles with this disease and the support they have received and their own successful stories of living with cystic fibrosis day to day, they are dedicated to this annual event.
Tickets can be purchased online at the events web site as well as any additional donations.
Feel free to visit the Cystic Fibrosis Foundation- Detroit Metropolitan Chapter.













Comments
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Thanks Charlene, Wonderful to meet you and great to have you come by.
Hi Carol, thanks so much.
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