Today is 'Rare Disease Day across the USA and in many parts of the world.
On this day, millions of patients and their families share their stories to focus a spotlight on rare diseases as a global public health concern.
Rare Disease Day is observed worldwide and to learn more about numerous events, visit the website www.rarediseaseday.org
If you would like to participate in Rare Disease Day or raise awareness of cutaneous lymphoma, here are a few things you can do:
- Write your representatives to tell them why rare diseases are important to you
- Thank someone who has supported you
- Write a letter to the editor and send it to your local paper about what Rare Disease Day means to you
- Send a proclamation request to your representatives
- Participate in an event near you
- Create artwork to commemorate the day and share it on the Rare Disease Day's Facebook page
- Share information about Rare Disease Day on your social media sites
- Join us on Facebook and Twitter at #skinlymphoma
- Participate in the Handprints Across America project
"Alone We Are Rare. Together We Are Strong"
To report a breaking story or a news topic, call (256) 738-2200 or drop an email to firstname.lastname@example.org.
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