The Faustman Lab at the Massachusetts General Hospital in Boston, MA is accepting Sjogren’s Syndrome patients into their clinical study.
They are in the process of developing a blood test to quickly and accurately diagnose Sjogren’s Syndrome.
They are looking at current methods for diagnosing Sjogren’s Syndrome, which often take several years.
If better diagnostics are not available it is possible that insurance companies could require periodic lip biopsies to make sure that Sjogren’s Syndrome is the diagnosis to continue your medical coverage.
The study involves a quick visit to their Charlestown, MA lab to donate a small amount of blood.
"Denise L. Faustman, MD, PhD, is Director of the Immunobiology Laboratory at the Massachusetts General Hospital (MGH) and an Associate Professor of Medicine at Harvard Medical School. She has worked in the field of autoimmunity for nearly two decades. In 2001, the Faustman Lab reversed type 1 diabetes in mice with end-stage disease, a project that is now in human clinical trials. Dr. Faustman’s current research continues to focus on uncovering new treatments for type 1 diabetes, as well as searching for therapies for other autoimmune diseases, including Crohn's disease, lupus, scleroderma, rheumatoid arthritis, Sjögren's syndrome, and multiple sclerosis." Source
The Charlestown lab is easy to get to. There is parking at the lab but if you take public transportation you can go to Mass. General and there is a shuttle every 15 minutes that will take you to the lab.
Call Elise Hsu at 617-726-4084 or e-mail email@example.com for more information.
On another note there is now a Facebook page for male Sjogren’s patients. It was created by Bill Simpson.
It is open to men only. Some of what he says on Facebook:
“....Everything from diet, cooking and recipes, exercise, medications, music, books or whatever
And if the discussions go towards boxing, football or other sports... well... that's ok too.
We are here to exhort and encourage each other, and to exchange and share information related to this disease.
We shall fellowship as gentlemen.
As we are male Sjogren's Syndrome Sufferers... we are a bit of a rarity.
We are all affected by Sjogren's and the various symptoms such as dry mouth and mouth sores, dry eyes, arthritis, chronic fatigue, and brain fog.
It affects us in our family lives with our spouses and children. It affects us in the workplace.
Although the majority of Sjs patients are women - the Sjogren's Syndrome Foundation site states a nine to one ratio - there ARE males with this disease as well.”