After sitting in waiting rooms too many times to count, while discussing the need for accurate information, it is interesting to note how many people rely on the internet for their primary source of information. It is usually easy to navigate the system and to find something that provides the information you think you want. However, as some experts suggest a great deal of inaccurate information is available on the net.
How can one be sure that what is found and what is being read is true, up-to-date information?
I am a 34 year survivor. I clearly remember the search for good accurate information about my first cancer diagnosis. Unfortunately, in 1977, the internet and the worldwide web had not yet hit the market. One had to rely on our individual doctors and the library. One had to hope the doctor would be available when you had questions and/or that an answer was readily available. OR, you prayed that your library had an up-to-date book with the information you needed; and of course, that the library would be open when you had that burning question.
Neither the doctor nor the library was there for you in the middle of the night!
With the proliferation of the internet and personal computers over the past twenty-years, patients and caregivers now have access to information 24/7! It is a wonderful tension reliever to be able to flip on the computer and do a search at 3:00 AM, find an answer that will soothe the mind and allow you to return to bed to get that all important restorative sleep.
BUT… There is a drawback in searching the web!
Anyone can create webpages. Everyone can upload information onto a site that may or may not address your specific concern. It may or may not be appropriate for your particular diagnosis; and, it may or may not be totally accurate and up-to-date information.
Using a reputable website, one you can feel sure is taking the effort to be accurate and up-to-date is an important step in any web search.
Recommended cancer information sites include:
National Cancer Institute
www.cancer.gov
800-422-6237
National Health Information Center
www.health.gov/nhic
800-336-4797
American Cancer Society
www.cancer.org
800-227-2345
Locally:
8219 Town Centre Drive, Nottingham, MD 21236
410-931-6850
Centers for Disease Control and Prevention
www.cdc.gov
800-232-4636
American Lung Association in Maryland
www.lungusa.org
Locally:
211 East Lombard St, #260, Baltimore, MD, 21202
T: (443) 451-4950 | E: lungmd@lungusa.org
Breast Cancer Network of Strength
www.networofstrength.org
800-221-2141
Leukemia and Lymphoma Society
www.lls.org
800-955-4572
While these are great resources, it is still important to remember to verify the information you find with your doctor. Be sure what you find is REALLY what you want and need.
It is extremely beneficial to each cancer patient to be an active and informed participant in your treatment plan!
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