A sufferer of the auto-immune disease Sarcoidosis had an opportunity to go on a family whale and dolphin watching adventure. Little did she know that it was an invitation to the newest and strangest round of symptoms of her twenty-five years with the dreaded malady.
When the time to leave drew near, she attempted to make sure everything was brought to the trip; however, she forgot to bring sunscreen. The best place on the boat was on the top deck, although she rarely has exposure to the sun, the excitement of the day took over. She wore a black baseball cap with her ponytail hanging through the hole in the back. Short sleeves and long pants were worn to avoid the sun and still remain cool enough to enjoy the extremely sunny day.
Having so much fun, and forgetting about the consequences, she had a ball. No whales were spotted on this day, but the thousands of fish and hundreds of dolphins truly made up for the experience.
The boat ride lasted three hours, but the wait outside to board, then the wait before actually taking off on the journey took at least another hour.
A few days later, on top of the sunburn, the itching that came and went was incessant. The shortness of breath and waves of a feeling of so horribly hot all over, then followed by hands and feet that were so cold, she went searching for her winter robe were a daily occurrence. Then came the shower where she washed her long thick hair. As several strands of hair clogged the shower drain, little thought was given to this experience until two days later when she washed her hair again. The second time, more hair than the first time came out, and she salvaged it from the drain. Upon brushing her hair, more hair continued to fall out until it was apparent that this was cause for alarm.
Because this hair loss was something that never happened before, the Internet was searched for a solution. Biotin was the supplement that was chosen, and keratin and sulfate-free shampoo and conditioner were purchased. Coincidentally, she had a doctor's appointment the following week, and managed to change it to the following day.
After reading posts about hair-loss related to Sarcoidosis, it dawned on her that this was the newest symptom of this disease that manifested itself in yet another way of rearing its ugly head and this time it was her fault for staying in the sun and the largest faux pas of not arming herself with sunscreen.
The doctor suggested a short round of prednisone. Although she was fortunate to have never been on prednisone because of the dreaded side effects of long-term use; she agreed to do the short round in lieu of going bald.
Yesterday she started her four pills on the first and second day, three pills on days three and four, two pills on days five and six, and then just one on days seven and eight; the story will continue in the next post addressing this topic. By the way, the biotin will remain a permanent addition, as there are no side effects to worry about with this supplement, as will the keratin and sulfate-free hair products.
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