Please come to Jordyn's Walk. Saturday November 12th 10am-2pm at Peninsula High School Track.
Jordyn was diagnosed with Fibrodysplasia Ossificans Progressiva or FOP in March 2008. For those of you who are not familiar with FOP, it is one of the most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. There are about 700 known cases of FOP in the world. That is 1 in every 2 million.
All funds collected will be used to purchase a customized wheelchair and continued medical expenses for Jordyn...
No need to worry about fixing breaskfast before you go: Kiwanis has generously offered a PANCAKE BREAKFAST for the morning of the Walk/5k run starting @ 8:30am. Donations appreciated
Bring your kids: Ben & Jerry's ice cream truck will be at Jordyn's Walk on November 19th and they will be giving away "free" ice cream. Donations appreciated.
Ivar's - Clam chowder, Kettle Corn and Lemonade and more vendors confirmed soon!
All funds collected by vendors goes directly to Jordyn's Walk! Even if you cannot walk tyou can still come down and participate in all the food and festivities.
For those of you who are not able to attend the Walk-a-thon but would like to make a donation, you can do so via www.paypal.com and send a gift to jordynswalk@gmail.com
For more information e-mail jordynswalk@gmail.com. Join their Facebook page at Jordyn's Walk
Read Q13's article Gig Harbor Teen with rare genetic condition needs wheelchair
Listen to podcast Help Jordyn Get Her WheelChair
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