An article in Time magazine questions Evan diagnosis, making a case for Landau-Kleffner syndrome, a very rare disease with only 160 cases reported since 1990. It appears that the syndrome shares common symptoms of autism: growing inability to understand what is said, loss of speech, motor difficulties , mutism. Jenny is quoted:
"Evan couldn't talk, now he talks", she says. " Evan couldn't make eye contact, now he makes eye contact. Evan was anti-social, now he makes friends. It was amazing to watch…when something didn't work for Evan, I didn't stop. I stopped that treatment [that didn't work] but I didn't stop."
McCartney is still cautious about vaccines, saying her son will never get another one. She feels better research is necessary to find long-term effects, but doesn't want to ban them completely.
Conversely, many praised her for standing up for autism, becoming the voice of a group that had been increasingly marginalized: parents who claim to be curing autism. McCarthy stepped down as the TACA spokesman in 2008. At that time, she became the front person for her own organization, Generation Rescue.
Currently the focus of her organization is increased federal funding to research environmental causes of autism. McCarthy says she is "the voice" of autism.
The question on everyone's mind, perhaps unspoken: What will she say next?
For more info: What is Klandau-Leffner Syndrome?