For a parent, the responsibilities and demands of raising a child with a disability can be overwhelming. Many parents experience a feeling of guilt, shame, and a feeling of hopelessness. Parents wonder what did they do to cause the disability or what went wrong. Anger and frustration are often common emotions. Parents also worry about who will take responsibility of their child when they are no longer able to due to age and/or death. Support groups can serve as a valuable tool. They assist and help parents with respite care, decision making, and guardianship decisions. They also help parents to better meet the emotional needs of their children. Parents also learn to accept their child for who they are and separate the disability from the child.
Children who receive strong emotional support from home are better able to develop the inner strength, patience, and courage necessary to cope with their day-to-day life (school and home). For more information on this topic, please contact your local school district's special education department, educational service center, of Department of Rehabilitative Services (DARS).