As CEO of the Sjögren's Syndrome Foundation, I am always grateful when donors take the time to ask "where does my donation go" and "what impact will my donation make" because I take great pride in being able to share with them the many accomplishments achieved by the SSF. This year, I am excited that once again we have seen amazing progress in the fight against Sjögren's.
That is why I appeal to you today to make a generous tax-deductible year-end gift as part of our 31-by-31 campaign. Our goal is to raise $31,000 in online donations by December 31! Your support will allow the SSF to continue our fight into 2014 by continuing to fund life-changing Sjögren’s research while also helping to better the lives of those living with Sjögren's.
A few major milestones achieved this past year thanks to the support of our donors include:
- The Oklahoma Medical Research Foundation completed the first genome-wide study of Sjögren’s where six Sjögren’s genes were identified. This is the first-time that potential genes have been connected to Sjögren’s and this research was completed by two SSF funded Research Grantees.
- Awarded six (6) Innovative Research Grants and three (3) Student Fellowships.
- The SSF's Clinical Practice Guidelines has received praise and support from the American College of Rheumatology, the American Dental Association and the American Academy of Ophthalmology.
- The SSF's National Patient Conference was held in Bethesda, MD with over 450 attendees with presentations from the country’s leading Sjögren's experts.
- 130 volunteers signed up to be an SSF Awareness Ambassador which brings our current total to 463 Ambassadors nationwide.
- Supported and managed 65 Sjögren's Support Groups througout the U.S.
- Assisted with the Restoring Access to Medication Act (S. 1647), bipartisan legislation which was recently introduced to the Senate in November 2013. This work was the continuation of my testifying before the House Committee on Ways and Means about the expense and difficulty with treating Sjögren’s with over-the-counter medication.
These are just a few of the things we accomplished in 2013 and, as you can see, your donations truly are impacting our efforts and the lives of Sjögren's patients. I ask you to consider making a year-end gift and help us raise $31,000 so we can continue our efforts for all Sjögren’s patients in 2014 and beyond.
Every gift helps and I thank you in advance for your support and generosity. Together, we will reach our goal and reinforce our fight against Sjögren’s!