If you will be in the Dayton area Sunday September 7th you may want to think about joining in the Emmett’s Run, Walk and Roll 5K to benefit families of Spinal Muscular Atrophy. This is an annual fundraising event sponsored by Families of SMA, in part by the fundraising group Emmett’s Army who work to organize the race and promote awareness about Spinal Muscular Atrophy because Emmett was diagnosed just before his second birthday with this incurable disease and in fact his family had never heard of it before that. SMA is the leading genetic killer of children under two years old, while also leaving its young survivors to never walk or even stand again. So come out to the race and help Emmett’s Army and other fundraisers take a stand and help fight this disease one step at a time. This is a fundraising event with about $975 gathered so far out of a $5000 goal.
Families of SMA is the world’s leader currently focused on funding clinical research to help develop treatment and hopefully a cure for SMA. They have made progressive success, providing results which give real hope to the families of these patients suffering from this disease. Some of this research has led to the discovery of the underlying cause and the back-up gene for SMA as well as much further research.
All race events will take place on Sunday the 7th at Eastwood Metro Park in Dayton. Race day will begin at 1:00pm with participant check-in and the race will start at 2:00. Closing announcements for the race will take place at 3:00pm. Registration for adults 18 and over is $25, youth 12-17 is $15, children 5-11 is $10, and all children 4 and under as well as SMA participants will get free registration. Please note that as of this late registration t-shirts are not guaranteed. Please see the organization website, www.fsma.org, for race and Families of SMA organization details. You can register online there or make donations to the foundation if you feel so inclined. But if you would like to come out and take a step toward SMA research progress, then come out on the 9th!