Susan G. Komen, Dr. Susan Love Research Foundation (DSLRF), and Young Survival Coalition have joined forces to produce a “groundbreaking” documentary dealing with the short- and long-term physical and emotional side effects of breast cancer treatments. The project is part of DSLRF’s Health of Women [HOW] study, initiated online last year to “track women and men over time to pinpoint risk factors, successful prevention mechanisms and eventually, to help identify the cause of breast cancer,” according to Dr. Love, who noted that the “collateral damage module of the HOW Study is expected to be launched early in 2014.”
The Health of Women Study is an online cohort launched in October 2012 to track women and men over time to pinpoint risk factors, successful prevention mechanisms and eventually, to help identify the cause of breast cancer. The collateral damage module of the HOW Study is expected to be launched early in 2014.
“There are more than 3 million people in the United States living with a history of breast cancer, but the cure comes with a cost. Whether they are people living with metastatic breast cancer, people whose cancer is in remission, or carriers of genetic mutations who choose to undergo prophylactic treatment, the side effects of today’s breast cancer treatments are wide-ranging, often debilitating and generally overlooked by the medical community. The price of being treated for breast cancer, though often effective at keeping the disease at bay and prolonging life, is physical and emotional as well as financial,” she stated.
“We were pleased to join with Dr. Love to find answers to these critical questions,” said Nancy G. Brinker Susan G. Komen’s Founder and Chair of Global Strategy. Brinker, a breast cancer survivor, herself.. “The information gathered here can help the medical community better serve breast cancer patients today, and the larger HOW Study will give us information that could identify causes and preventive strategies for this devastating disease.”
In turn, YSC CEO Jennifer Merschdorf (who also beat breast cancer) stressed the need to provide specific information aimed at young breast cancer survivors and how cancer treatment impacts their lives both professionally and personally, including the ability to have children.
Readers interested in submitting questions regarding collateral damage from breast cancer can submit them online to www.questionthecure.org, #questionthecure through the end of this month. In addition, women who would like to take part of this initiative can register for the Health of Women [HOW] Study (www.healthofwomenstudy.org) and complete the basic questionnaires on personal health and/or breast cancer diagnoses. They will be notified by email once the collateral damage module is complete and online.